The parents of terminally ill baby Charlie Gard have spent precious time away from his bedside this week in the High Court, fighting the doctors at Great Ormond Street who want to turn off their child’s life support system and let him die.
Charlie’s rare genetic condition is progressive and incurable and at eight months old he is now blind, deaf and has extensive brain damage, as well as unable to breathe without a ventilator.
I can understand his parents’ rage and their determination to fight for their child, because my nephew was brain-damaged and trapped in a coma last year from which he never recovered. The sight of a loved one unable to respond, wired up to a battery of machinery is absolutely heartbreaking. You feel powerless.
MORE: http://www.independent.co.uk/voices/charlie-gard-terminally-ill-baby-court-case-america-kickstarter-kindest-let-him-go-a7672801.html
